Chronic Conundrums

You know that feeling when you are completing a jigsaw puzzle only to find that a piece is missing?

It’s a devastating moment. Your stomach turns just a little. All that work, all that effort, all that anticipation of a final outcome. A completed picture was the awaiting reward but it’s been snatched away from you!

Chronic and complex illness is so often like that. We are given a diagnosis, then another, then another and for some the list continues to grow with every medical appointment. Our medical team try and put the pieces of the puzzle together.

Good progress is made. The puzzle pieces start to fit together. Treatment plans are made and followed with great anticipation that symptoms may reduce, even if a cure is out of reach.

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A feeling of hope returns as you feel you are in the driver’s seat navigating the road ahead. Nothing can stop you now.

Nothing except a mising piece of the puzzle.

A chronic condundrm. A change in symptoms,  a new symptom, a worsening of symptoms. A knowing feeling that something is not right. Your stomach turns just a lttle. Just like finishing that jigsaw puzzle only to find a missing piece.

Living with chronic disease is often referred to as the gift that keeps on giving. Labelling it a gift is a stretch at best but it defintiely will keep you on your toes.

I have a worsening of symptoms and new symptoms. My condundrum is do I “watch and wait”? Do I make an appointment to see my GP? Do I go to the ER?

It’s a Chronic Conundrum faced by so many in the chronic illness community. It’s the thing we most dread. We want to keep things moving on an even keel.

We don’t want to face condundrums, neither do we want to be a conundrum to our Drs or our family & friends. We would love to focus on something other than our chronic health but when it’s all encompassing & ever giving, we can’t escape.

The reality is we will often be in this position so we need to find ways to cope.

I don’t have all the answers, in fact I often don’t have any answers but I do like to problem solve & find a way forward.

A way out of my chronic conundrum restores peace & hope.

So I have made a plan & taken action to deal with this latest puzzle:

  1. Stay calm – I’m doing this by writing & planning. Works for me!
  2. Make an appointment with my GP
  3. Make notes for my Orthopaedic Surgeon
  4. Get organised with xrays & notes for my Physiotherapist
  5. Don’t change anything to my current treatment plan until I’ve spoken to my GP
  6. Rest & prioritise all necesssary tasks
  7. Watch & wait with some of the new symptoms that require assessing. Discuss referral options to new Specialists if needed with my GP.
  8. Now…..go & do something relaxing knowing that while I haven’t solved the conundrum, I’m back on track & heading in the right direction.

Until the next chronic condundrum of course. Xx

 

If you’re looking for genuine support, care, understanding & friendship, you are so welcome to join my closed Facebook support forum , Medical Musings with Friends. It’s a safe place to connect with others living with chronic & complex diseases, who truly understand the daily challenges. A warm welcome awaits.

If you would like to read a little more about me here’s the link to My Story

I’m also a Contributor at “The Mighty”  

The Mighty – Author: Samantha Moss

 

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4 thoughts on “Chronic Conundrums

  1. I think you have a great list here! Minimizing stress and the “what if’s” is difficult. Stay the course and I hope you find answers and lots of health ahead!

    XX,
    Alexa

    Liked by 1 person

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